Chronically The Patient Empowerment Newsletter
Business leaders constantly seek fresh perspectives and insights to share with our teams and customers. The conventional route is to invite renowned academics, CEOs, and successful entrepreneurs to provide their wisdom and perspective through keynote speeches and presentations. However, we may be missing out on some of the most compelling and meaningful stories by not including patient voices.
Your next speaker should be someone who has personally experienced illness, injury, or other health challenges. Rather than coming from the vantage point of management expertise or medical knowledge, a patient speaker will offer a candid view from the frontlines of healthcare. They can provide a humanizing glimpse into what it is truly like to navigate the world as a person in need of medical care, assistance, and compassion.
Patients have invaluable lessons to teach about resilience, coping, advocacy, and finding meaning in difficult circumstances. While doctors and executives understand healthcare systems from the outside, patients know intimately what does and does not work from the inside. They can offer poignant anecdotes, sometimes humorous and sometimes heart-wrenching, that bring health issues down to a personal, emotional level. Rather than dry statistics or best practices, a patient speaker will share real lived experiences that attendees can relate to and remember.
In addition, patient voices are crucial for emphasizing empathy, humility, and understanding different perspectives in healthcare. Patients have not had a meaningful role in decision-making processes for too long. Involving them in conferences and presentations is one small step towards shifting that dynamic. It also helps humanize an industry that can sometimes feel cold, bureaucratic and focused more on profits than people. A patient up on the main stage reminds everyone that healthcare is about individual human lives and well-being, not just business metrics or scientific progress.
Naturally, find a patient speaker who feels comfortable sharing their journey and has a compelling story to tell. But remember how much people will connect with something real, vulnerable, and outside the usual expertise. A patient brings authority of a different kind – the authority of lived experience. Even for clinical or executive audiences, such an intimate human story can be far more memorable than abstract concepts, no matter how insightful. It plants a seed that may shape how people later approach their own work and the people they serve.
So, the next time you are planning a conference, could you open your search beyond the traditional spheres? Please look out for candidates who have walked in the shoes of those you, your employees, and your customers ultimately exist to help. Your attendees will be richer for hearing an authentic patient voice alongside the many expert perspectives they are accustomed to. Such a balance serves as an important reminder of why this important work matters and who it is truly for.
(c) - Denys Michalevich
Roi Shternin is a patient advocate, speaker, and social entrepreneur dedicated to empowering those facing mental health challenges or living with invisible illnesses.
After falling ill at a young age and experiencing trauma during his service in the Israeli military, Roi spent nearly a decade immobilized and undiagnosed. He eventually self-diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS).
Frustrated by feeling misunderstood and dismissed within the healthcare system, Roi was inspired to help others in similar situations. He founded The Patient School to educate people about invisible illnesses and mental health issues.
An engaging international keynote speaker, Roi shares his powerful story of resilience, determination, and thriving despite immense adversity. His talks motivate audiences to overcome stigma, speak up for their needs, and take control of their well-being through community support.
Through holistic lifestyle changes, Roi proactively manages his own condition, living as proof that mental strength and compassion can help anyone facing challenges. He is passionate about revolutionizing healthcare accessibility so no person feels unseen.
Audiences find Roi’s authentic, hopeful message universally inspiring. He leaves them energized to face life’s obstacles bravely, knowing they are not alone in their wellness journey. Roi continues advocating through the organizations he founded, aiming for a healthcare system that embraces all.